Patient Stories

Living with Muscular Dystrophy: Jane's Story

Jane with Her Mom By the time she was in second grade, Jane Lockwood was already being teased by her classmates who didn't understand why the young girl was allowed to sit out during P.E. classes while everyone else had to run. And they certainly didn't approve. So, with her mom's help, she sat down and wrote a letter. Then she read it aloud to her classmates: "I have muscular dystrophy," she explained... Read Full Story

A Family's Journey: Collin & Lilleen's Story

Collin and LilleenIt's 1976 and flash bulbs pop as eager relatives urge seven-year-old Lilleen Walters to smile for the camera. Feeling fancy in her flower girl dress, she fights to curve her lips into a smile to please the wedding guests, but her muscles won't obey. Days and months go by, and Lilleen still can't smile.... Read Full Story

Fear is to Be Conquered: Ben Cumbo's Story

Ben Cumbo For Ben Cumbo, a diagnosis of Duchenne muscular dystrophy (DMD) meant a future in the spotlight — literally. As a National Goodwill Ambassador for the Muscular Dystrophy Association (MDA), Ben and his parents traveled around the country to raise awareness and funds. In fact, you may remember Ben spontaneously showing off his dance moves on national TV alongside comedian Jerry Lewis during the 1997 MDA Telethon... Read Full Story